"So we've waited nearly a year to get him up and standing, which will impact his joints and his legs for his development." Last August, Alex had surgery to fix the curve in his spine, causing him to grow several centimetres, which meant he was too tall for his standing frame. And no-one could tell you when you would get an answer." I didn't sleep very well, I didn't want to leave his side, it was really stressful. "You didn't know whether it would happen in the day or the night. Then they had to wait five months for an EEG (electroencephalogram to measure electrical activity in his brain) to get a proper diagnosis. In 2018 Alex, who had no previous history of epilepsy, had two seizures in two days in which he stopped breathing and his mother had to resuscitate him. However, some waits were worse than others. It does not store any personal data.11-year-old Alex using his standing frame. The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. The cookie is used to store the user consent for the cookies in the category "Performance". This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. The cookies is used to store the user consent for the cookies in the category "Necessary". The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". The cookie is used to store the user consent for the cookies in the category "Analytics". These cookies ensure basic functionalities and security features of the website, anonymously. Necessary cookies are absolutely essential for the website to function properly.
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